I had a follow-up visit with my pulmonologist yesterday and discussed the course of action. He wanted me to be on these 3 antibiotics for a max of 12-18 months:

1. Biaxin
2. Rifabutin
3. Ethambutol

He explained about the side-effects on the eyes and liver. I need to be monitored every month for the next 3 months. I remember when I was on TB medication, it was supposed to be for only 6 months but it had to be extended for 9 months because it has to be adjusted due to extreme nausea. I was always feeling nauseated. I was h ospitalized for dizziness and vomitting. The most downside is while I am on this treatment, my rheumatologist cannot treat me with anything that suppresses the immune system (assuming I have autoimmune disease). Its good that I am seeing my new rheumy this Friday and I can discuss with her my predicament.

If only I have better choices....