Thread: New Experience
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Old 09-11-2012, 01:28 PM
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Join Date: Aug 2012
Location: Pleasanton California
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10 yr Member
PhotoBug50 PhotoBug50 is offline
Junior Member
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Join Date: Aug 2012
Location: Pleasanton California
Posts: 19
10 yr Member
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Quote:
Originally Posted by pingpongman View Post
Yesterday I was getting my IVIG and met a lady who was getting hers also. She also has MG. It was sorta nice to chat in person with someone who has experienced the same things. We had a long chat about treatments and various problems we have had. It really makes you feel that you are not alone. One of the nurses set up the meeting because they aren’t allowed to disclose other patient’s diseases. If you ever get the chance to do this I highly recommend it.
Mike
I wrote to the MG foundation of California and found a local MG support group that meets about 15 minutes away from here once a month or so. They sent me lots of very useful information on every aspect of MG, meds, lifestyle adjustments, coping strategies, etc. It will be nice to attend a few meetings and meet a some fellow MG'ers.
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