Oh, this is a terrible story. You sound really sick. I can't believe he dismissed you so quickly. Please don't be afraid to go to the ER. You seem like you need some emergency treatment, like IVIg, or at least something that works fast, like Prednisone. Also, don't hesitate to call back (or have someone call for you!) and say, "I just saw the doctor, but I am worse. I need some emergency treatment. I can't swallow or get up without help." I have often found that asking for help a second time gets a response when the first request doesn't.

Imuran is a drug that suppresses your immune system. The thing is, it can take months before it starts to have any effect. Six months is typical. A year is not unheard of.

I am on Imuran and haven't noticed any side-effects, but other people have nausea or lose their appetites.

At the very least, you need regular blood work while you're on Imuran to make sure it's not affecting your liver or platelets. Many doctors recommend that you have a blood test before you start the Imuran, to make sure you can metabolize it.

I hope you can find a way to switch neuros. The price may officially be $400, but no one pays that. The neurologist has a contract with the insurance company for a fraction of that, and if you ask, he will almost certainly give you a self-insured price.

Abby