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Old 09-11-2012, 06:51 PM
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi lit Love

I wish there were answers. My doc. has gone to bat for me with severl reps. and though the pharmacutical company.
The one I need the most of for RSD. It is a mix of 6 drugs in a topical for. It has allowed me to wean off morphine. The origional company who provided my first script, did something bad and charged medicaid bogusly, and went under. I can't get this script now anywhere. They want $30 dollar per gram, and she wanted me to have 240 grams, for application 4 times a day. I don't know who to appeal to. Medicaid part D said NO twice even with letter from doctor.
The other one I need is to prevent cancer. I have barretts esophagus. It is pre-cancer. I need a double proton pump inhibitor. Medicaid part D will only cover 30 day period, not give me the 60 I need. I can't control this disease, and I get endoscopy every 4 months. Called Delixant. Doc has written two letters, and I already appealed. How do I get in touch with the company who makes that drug? Would walgreens have information on it? This med is $350 per 30 pills. I only receive 600 in benefits per month. Not enough to live on, much less for meds. I am currently loosing my paid for home. Can't pay the bills or the taxes, in real trouble, very bitter about it.
I am scared to say the least. I also go see a physiatrist, she has put me on B12 injections, proton pump inhibitors prevent the absorbsion of B12, so it is needed. She also put me on 7 other suppliments as I have 5 auto immune disorders. NONE are covered. For the first time in years, my hair is growing back and so are my nails, I had lost both. So these are working, I just don't have the money for them. I am in trouble in so many ways, I don't always know which way to turn. any information you can provide I will follow up with. The vitamines are over $200 a month. Obviously, these needed things are more than I get in benefits. That is why I can't pay my bills, and am loosing my home. Thank you for your ear. I can use advise for sure. ginnie
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