Thread: Trouble Chewing
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Old 09-11-2012, 09:01 PM
hajile99 hajile99 is offline
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Join Date: Aug 2012
Location: Las Vegas, Nevada
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10 yr Member
hajile99 hajile99 is offline
Junior Member
 
Join Date: Aug 2012
Location: Las Vegas, Nevada
Posts: 70
10 yr Member
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Quote:
Originally Posted by PhotoBug50 View Post
Personally, I did not notice much of an improvement in chewing strength and improved swallowing until I got up to 60 mg's Mestinon 4 times a day, taken during daytime, so each dose is 4 hours apart. IVIg and presnidone may also have helped improve it, but I see more of a cause and effect with Mestinon. Speaking is okay now with me, except that I an stuck with that weak "Godfather" voice, but it beats the "Hellen Keller" garble that occurs when those muscles completely fail. Going in for Thymus Cat Scan with contrast today....will see how that thing looks. Still early days, diagnosis just one month ago, although I clearly had deteriorating symptoms for the last 6-8 months. Peace be with you. P.S. You know if you have a good food processor or blender (I have the Vitamix 5200) you can whip up some pretty good tasting and nutritious stuff in there. I've been combining fresh veggies right from the garden with organic fed chicken. It comes out in a puree but boy is it tasty...and easy to swallow.
I'm strongly considering discussing an increase in dosage with my doctor because it just doesn't seem to be helping much at all. Hoping the IVIg will help, if it ever gets approved by my insurance. And I'm actually going in for a cat scan tomorrow. Hope yours went well today!

I really hate the thought of resorting to liquid or pureed food, but I guess I'll just have to deal with it if that's what it comes down to. The Mestinon seems to have helped enough to at least get me through a meal as long as I time it well enough.
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