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Originally Posted by painman2009
Ok this is tough... I know.. but here it goes. Treatment is always about who has the better health care and or the money. what do you do if you dont have either??? this leads into my question and this might help others if any of us have answers!
In order for comp to approve the treatment my neurologist believes will help me, I have to pay the difference of costs as they will only pay in NY fee schedule and JOHNS HOPKIN is only accepting maryland fee schedule, and I am told that it will be significant. I was advised I should be prepared to receive a bill of up to 7-12,000 dollars.. where is that money going to come from. my question goes out to all.
Does any-one know of a charity group that can help offset this cost, and or an organization that can help fundraise for individuals that cannot afford such pricey treatments with the RSD/CRPS "issue"??
Now I have already contacted tracy at RSDSA and she is looking into it as well. I also have tried workers comp board, Advocate for disabilities, and local social services. in wihich they all said ..Im not sure but the will look into it. I also left this same question for my comp atty and liability atty.. In step I tried to find a phone # contact for the house of delegates which is directly resposible for the AMA to see if they can look into their guide lines for treatment, only to find out that nobody can find a number for them, I also sent emails to theAMA
(i do not know what I truly expect from them but why not right?)
I also have placed out feelers in the community around me to see what might pop up. but I would like to know on a more broader scale what options we as a group have.. so any information would be great and hopefully some of the better minds on this forum might be able to help make what ever answers I get be more than what it is. and as for the greater minds I men all of us as a whole.... thank you and peace and low pain to all
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That all really sucks...I am sorry to hear all of it. That is a lot of money and other than the avenues you have already tried I don't have any better ideas. Will the hospital work with you on any type of a payment plan or a discount program or something for the out of pocket costs? I know that even on a payment plan it's still a matter of coming up with that money every month...but it might be easier to handle that way. Or would there be some way for you to get a loan if the hospital can't do a payment plan for you?
I know these things aren't ideal and it would be better if you could get some help to pay for it so it doesn't have to come out of your pocket. I didn't pursue some treatment options (like ketamine) because of the cost. I just didn't have the money and the stress of even thinking about where to come up with it was just too much. I'm happy with the way things have worked out in regards to that...it wasn't meant to be for me...but I know how you are feeling right now. When we have to make decisions based on our pocket books instead of based on what we actually NEED...that is sad. But it is often the reality unfortunately.
I hope you can get it worked out. I think it's great that you have a doctor willing to go to bat for you. That's half the battle right there really. Good luck and if you find anything out about getting assistance, please share. I'm past needing it at this time (though who knows what the future holds) but I know there are many others in similar situations who could use the info. Take care.