Hi
On the thought about chronic pancreatitis. I had this about 6 years ago pre all of this. Anyhow I did not have all the symptoms either but after testing I was dx with it. Im not saying you do but I dont think you have to have all the symptoms. I was placed on a special diet and my bloodwork was monitored etc.
I am sorry you are not getting answers and in my experience it seems that most doctors only stay in the speciality they are in. What I mean is that they dont connect symptoms always. So it does not surprise me that the neuro felt the gi is separate. It may not be connected but sometimes I feel they just dont want to go out of the specialty they are in.
Have the doctors suggested any type of meds or treatment? Have you been tested for Lupus?