Quote:
Originally Posted by StephC
Did they do another sfemg today? Results?
By the way I appreciate the handwriting sample...it is interesting. I have noticed deterioration in my handwriting but not nearly so quickly. Was that done with or without being on mestinon?
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The writing:
Attached below is my handwriting after 20 minutes with just a small 20 mg dose of Mestinon.....
Here is also an example after cooling with ice (sample no.4).......
http://neurotalk.psychcentral.com/thread170193.html
Would be nice to see someone else´s - I did find one sample of writer´s cramp and thought that might be it - then a You Tube video revealed it DEFINITELY wasn´t
it!
I have also done some experiments with Mestinon and eye muscles which even my optician was interested in!
The SFEMG:
My gut feeling about the one SFEMG test I had was really good. I overheard talking about some instability with the actual test but I am
quite sure I would not get a different result if they were to redo it the next day. Experience from other areas in life gives me the impression that if I were to take it again and get a positive result, my chances would be increased by changing the following 3 factors: 1) timing 2) practitioner 3) equipment
It would have been cheaper for them to observe my very rapidly fatigable myasthenic arms and legs that day! Anyhow it doesn´t make sense that
Mestinon which improves neuromuscular transmission has been
effective whereas the
neurophysiological test for neuromuscular transmission
has not!!!
In case anyone is reading this thread in the future and needs more info about negative SFEMG´s
See here:
http://www.mga-charity.org/forum/pre...could-it-be-mg
(A huge thanks to those people in that thread on every negative SFEMG´ers behalf!)
And some extra bits here:
http://www.springerlink.com/content/w916713q36h18333/
http://www.ncbi.nlm.nih.gov/pubmed/22386321
http://www.mga-charity.org/informati...inter-mga-news