Thread: What can I do
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Old 09-13-2012, 07:19 AM
jprinz99 jprinz99 is offline
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Join Date: Jan 2008
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15 yr Member
jprinz99 jprinz99 is offline
Senior Member
 
Join Date: Jan 2008
Location: at home, of course
Posts: 1,140
15 yr Member
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Kitty,

I feel so badly for you! It sounds to me (playing devil's advocate here...) that your husband is frightened and has been doing a lot of worrying & stressful thinking about how your MS might impact you & your family - and he has been hiding this worry from you very well.

Perhaps you both might want to consider it less of a "all or nothing". By this I mean:
why does the MD want you to get the JC test? Are you (or the MD) considering taking a drug that JC is required for? After all, you could always take the test later on, if you decide to investigate going on X drug at some point. Is your current method of dealing with MS not working anymore for you. For example, mmy DH can't seem to stop grasping at strws to "make me better" - he struggles with accepting that MS usually progresses regardless of what we do. He also wants things to be predicatable and not lose me (his biggest fear, I suspect).

Insurance (or lack of) is very real and very scary to a lot of people. I suspect your DH is terrified of not being able to one day afford/access the care you may (or may not) need. Talk about a burden to carry around inside for anyone! You or him.

I humbly suggest letting things quiet down for a day or so, then asking him to sit down and talk. I wouldn't talk to him (as in try & convince him to go your way) - but to sit down and share -> both your fears, thoughts, desires and plans. You are a "team" in a marriage and {at least for me amy DH} we need to remind each other of this every once in awhile. Communication is vital - especially when dealing with the unknowns of MS.

After all, nobody invites MS into their lives; it just inserts itself and demands we work with it.

Trust I say this to be helpful and caring, not to tell you what to do.

{{{hugs my friend}}}
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Jane

Cleverly disguised as a responsible adult!
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"Thanks for this!" says:
ANNagain (09-13-2012), Erika (09-13-2012), KittyLady (09-13-2012), SallyC (09-13-2012), Twinkletoes (09-13-2012)