Member
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Join Date: Apr 2011
Posts: 103
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Member
Join Date: Apr 2011
Posts: 103
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I am glad to hear that one problem is solved, I just wish that your family understood the seriousness of the SPS diagnosis and the symptoms that you experience. It is important for you to have a support system to help you deal with these illnesses especially when you have a flair up. It can be dangerous if you ignore your body and try to continue your day as if you were healthy. You are not!
It would be good to have an open conversation with your neurologist about your situation if you haven't already. Maybe he/she can suggest some way to get through to your family that you don't have a bad cold or the flu but a rare serious illness. You really need support and I speak from experience.
Good luck.
Becky
Southern Bell
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