To me, it sounds like your DH is worried about you running out of options for treatment. Men get more afraid about our situations than we are. They want to fix us even if we know it isn't fixable.

They don't understand how we could be willing to accept doing nothing if there is something out there that "might" help but might give us an even worse disease.

I made up my mind months ago that I wouldn't go on Tysabri because of a gut feeling. It had nothing to do with statistics or numbers of cases of PML. It was me just feeling it wasn't right for me. I can't explain it anymore than that. I did have the test done because my neuro ordered it and I'm negative for the antibodies. I guess I could do Tysabri, but I'm not going to do it.

I would sooner do more IVSM and risk my bone density. Others are more afraid of the steroids. We each have to decide what is right for ourselves. I had great success with IVSM in recovering from a very debilitating attack. I know other people who didn't feel that steroids did much for them.

Unless the test for the JC Virus isn't covered under your insurance, you might consider just doing it. It's just a blood test. It might end the whole discussion about Tysabri if you are positive for the antibodies. Even if you are negative for the antibodies, it would also just shut everyone up for awhile.

It sounds like you are OK on Copaxone right now so there isn't any rush to change anything. There are new drugs on the horizon that might end up a better option. There is also more time to see what happens with Tysabri with more years on the market. I have friends who found Tysabri to be a miracle and others who didn't see a lot of improvement and went off of it. It all seems like a crapshoot. What works for one, doesn't work for another.

You sound very frustrated with family support and at the end of your rope. I've been there and I have found therapy for me to be far more beneficial. I'm learning coping strategies for myself and how to better handle those around me. I also have someone to just listen to me and support me without condition.

I hope your situation improves and you feel better soon.