I think SSD is based on your origional diagnosis. If there is a change, they will review it. Keep notes, and track of all your appointments and tests. You won't necessarily loose SSD, but they may put you up for review. Do you have an assistant that helped you through this process? Contact him or her and let them know what is going on, so that if anything different does occur, you are on top of it. It will be OK. ginnie