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Old 09-15-2012, 12:03 PM
sheilasrite1 sheilasrite1 is offline
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Join Date: Sep 2012
Posts: 1
10 yr Member
sheilasrite1 sheilasrite1 is offline
New Member
 
Join Date: Sep 2012
Posts: 1
10 yr Member
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Quote:
Originally Posted by pedalpusher62 View Post
My 14 year old son had a conversion from a VP shunt to a VA shunt about a month ago. He continues to have headaches. Can you tell me the things you have done to "get used to doing what you have to do to make yourself comfortable"??

He is taking Topamax which really does nothing to help with his headaches. Is there a medication you take? Have the headaches ever gotten so bad that you throw up or have vision problems? What do your doctors say about the chronic headaches?

Thanks so much for your help.
My daughter is 31 and too was taking topamax when she had her VP shunt. Got that revised abt 1 1/2 yrs to a VA shunt. I myself weaned her off the topamax because it didn't do any good anyway. Talk to your doc abt that. Took her to the ER 4 days ago. Had a ct scan done cause of sharp pains, gagging, eyes not focused but shunt is working good. They recommended I get another neurosurgeon to follow up ev other month. She had a UTI (which she has had since birth but flares up 1x a yr), gave her antibiotics, Hydrocodone for pain in her head. I don't know what other disabilities he has but my daughter has no bowel or bladder control. I give her Immodium to not have "accidents" and if she doesn't go for a cpl of days it gives her headaches too. Gonna try another way to regulate her. Good luck. We learn after yrs of this to do our own remedies sometimes at home. Cause what works for one might not work for another. Docs and neurosurgeons have a standard way of doing things. We learn to work around that to make our kids comfortable.
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