View Single Post
Old 04-24-2007, 02:16 PM
shiney sue shiney sue is offline
Senior Member
 
Join Date: Mar 2007
Posts: 1,812
15 yr Member
shiney sue shiney sue is offline
Senior Member
 
Join Date: Mar 2007
Posts: 1,812
15 yr Member
Default jak

Go back and read the 5 stages jo 55 posted. Please learn them because
someday you wil be able to tell them to another in pain.If nothing else,
your concern for them,may begin there healing!!And back to what goes
around comes around.

I've been dealing with polyneoropathes probably far longer then i know are
care to know ( there here ) it's back to one day at a time..I live by a big
teaching hospial.I was a nurse in bigger one's.But was toally surprised there
was no support group for PNers..What i know the call it the silent deseae.
Come on 3 hospitals a great rehab!! Go to arthritis support or this or that.
Even have one Dr. who was very busy as me to refresh his menory
on PR, I threw everything my record, my notes ohis desk. Almost wore me
out!! I told i can wait while you have these copied,and then you can read
it all tonight. thought there is another waste of my time.He did have
them copied. Hmm!!

My Neuro Dr. said go on-line and 2 years later i did..But first i wanted to
start a support group for those who had no computer or could not afford
affore them.

I called a chaplain friend ,asked if he could help and 2 nurse friends We
decided when,where and how many we could handle. Stared putting up
posters.We decided we could start out with 10 but nobody called at
the last min.to many did,we had a large waiting list.We went from a church
to the teaching hospital..The supprt group made the rules..The support
allowed Dr. and nurses could monitor (be quiet) they did and i hope
learned..I have beeen asked to start one at another hospital but i have
learned to PACE myself i said no!!But there it someone who will.

I learned acceptance,if you need to vent i would ratter do it in front of
the people at Neuro talk or in the supprt group,not to 3 children who love
me.I think if you put your energy in something you can still do,well anyway
it helped.I reached out and asked for help,also hard for me s.But you must,
tell your family these is a very bad i know you can't cure me but please
won't you take the time to lsten..I'm sure they will and tell them the 5
stages..And i think you just might make it to acceptance then you can get
on and do many things that make you pround and yes happy.

Not all Neuro Dr. could a hoot about PN you got 1. Having a Hmo can put
a limit on who can see,but don't put a limit on what you can do.Get out
and find your place it's there,and your here getting great advice.
Do you know how many eldery are sent home to suffer because a Dr. has
said (your just old) That should be answered and your (stupid)!!

What i'm tying to say it's your foot it hurts vent...My youngest son has
his 30 yr. old sister-law who has been throgh PN for 2 yrs..They live in your
area,she was very sucessful at everything she has ever done she had to
shiney sue is offline   Reply With QuoteReply With Quote