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Originally Posted by larry.boggs
I have been diagnosed as having segmental myoclonus. One neurologist said it was spinal myoclonus. I beblieve this started about 18 months ago with neck surgery. I ended up with a real bad case of MRSA. The wound had to be re-opened and all the hardware removed. The wound was left open and I had to take antibiotics intravenously for 3 months. One neurologist tried to treat it with medication and I am now waiting on an appointment to see another specialist. Anyone have any ideas about this.
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I also have segmental myoclonus. after seeing my MRI, I could see where the damage was in my upper back and neck, due to when I was young, carrying egg baskets the wrong way. Meds didn't work, just made me spaced out all the time. I went to a Chiropractor, he tried to fix the damage but was unable to. I quit the Neurologist. I really don't know where I am going next but am still trying and if I find any help, I will be sure to let everyone know. This condition has prevented me from driving, bummer. It is a comfort to read the letters from everyone, even though there isn't many of us in this world. I do have restless legs, take Ropinirole every night, works great. I don't suffer from leg cramps or pain anymore. I also take Gabapentin at night too, helps too. Good luck to you, keep in touch. Jeanne
