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Originally Posted by beverlychambers24
recently discovered I have GN, what a rollercoaster this has been. The pain is localized to the right side of my tongue so severe at onset that I am unable to eat,drink or even talk. I can understand why some people choose suicide. The pain is usually worse at night subsiding in the mornings somewhat. Does anyone know of where I can receive help for a treatment plan as I am one of many americans with no health insurance.
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I just ran across your post. I'm desperate to speak with someone who has suffered this disease. My mother has just been diagnosed and it's breaking my heart to see her in such distress. She has been in continuous pain now for 8 weeks. She finally found an ear/nose/throat specialists two weeks ago who recognized what he might be dealing with. He sent her to a nuerologist and she's been taking Tegretol for 9 days now. She has not been able to tolerate this medicine. She throws up repeatedly and has terrible diarreah. She has also started having tremors. We wonder if we should search for a new doctor who has more experience with this. I would appreciate hearing about how your treatement has progressed and if you have been able to find a way to manage this disease.