Hello and welcome.

You're posting on a very old thread, so you may not get replies from the ones starting or participating in it.

I also have Sjogren's with neurological complications and it just so happens that Dr. Julius Birnbaum is my physician. Your best bet would be to read through the attached link about getting into the Sjogren's Center at Hopkins. It's a lengthy and detailed process to be accepted so follow the direction carefully. Contact Caitlin at the number listed (410-550-1887) and have her help you get started. You'll need to fax all your pertinent records and referral from your doctor for review and approval. Make sure to include the actual lip biopsy slides not just the report as Hopkins will have it re-read. Same goes for MRI's, CT's, skin biopsy (if you've had one) etc...send copies of the CD's/slides not just reports.

http://www.hopkinsmedicine.org/rheum...ns-center.html

It can take several months to get an appt...especially with Dr. Birnbaum. It requires some patience, but hopefully you can get in before the end of the year.

You know, treatment of neurological manifestations of Sjogren's can be extremely difficult...and in many cases there is no effective treatment. There has been some positive results with IVIG but it all depends on the type/extent of damage. I think you're wise to seek out the Sjogren's Center for help. Gook luck and keep us posted.