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Originally Posted by ronda102458
Hi would appreciate anyone with info about this crazy disease to write me. I was just diagnosed recently. I have the aip type. Anyway glad to have this forum. Pleased to meet everyone!! 
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Hi Ronda! Things that Ive had help me.
Get a safe drug list and keep it on you there are some drugs that can trigger a reaction and alot of pain involved with it.
I know that you have a different form then me but try to get all the information you can.
I would like to hear from you more about your form I have CEP/HEP so we may have different symptoms.
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