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Originally Posted by ginnie
Your State senator, or Congressman, may have some options for you regarding getting funding to go to mayo clinic. My friends held an auction for me when I first got sick, which paid for my first surgery. I sure hope you can get to Mayo. that is where I was diagnosed and at least figured out what was wrong with me. I wish you all the best. ginnie
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That is a great idea and I will look into it, I was thinking about trying to get medicare as a secondary insurance, though not sure how that would work..
Quote:
Originally Posted by daniella
I would call Mayo's billing and explain your situation. They may be able to suggest something or I think some are non profit so will work with you? I am not sure about Mayo though.
As for the pancreatitis and I guess I am asking you this does that create nerve problems? My past pancreatitis issues and now nerve problems I never thought of a connection.
You stated gi issues but what about bowel problems?
I know you stated you are not being treated with any meds but I wonder if you have tried any dietary changes? Have you thought about seeing a pain doctor?
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Personally I do not know if pancreatis creates nerve problems, I wouldnt think the two are related but rather distinct issues, I think it was another member who mentioned that as a possibility for my GI issues. I don't really have bowel problems (if by that you mean issues actually going to the bathroom, i.e., constipation/diarrhea), I have neither, bowel movements are usually once or twice a day and fairly normal (sorry if TMI, lol).
I have tried some dietary changes, went dairy free for a bit, didnt notice anything, and also tried gluten free for about 4 weeks, didnt notice anything, but from what I hear that would be too short a time.
Havent thought about seeing a paindoc because I dont really have pain...just have the sporadic tightness in leg muscles, so not sure what they would do for me, but I might mention it to my PCP. He did say that he thinks some sort of muscle massage therapy would be useful tho..
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Originally Posted by en bloc
I really think you should consider adrenal function testing. It can cause nausea, POTS, fatigue, frequent urination...frankly everything you list. I too have some similar symptoms and just asked about it myself. I have a ACTH cortisol/cosyntropin challenge test set up for Thursday first AM. Your mention of the adrenalin rush might be key. They always test adrenal function first am because cortisol increases as soon as you start moving in the morning.
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Funny you should mention that, I was jsut thinking this and looking in to it today, especially because a cyst was seen on the pole of my right kidney (which could mean on the adrenal gland)...
I think I have actually had the test you are describing is it called a cortisol stim test? where they wake you early in the a.m., test your atch and cort, inject you then test it an hour later to see if it doubles?