Quote:
Originally Posted by dotty57
 i was diagnosed 2 years ago with idiopathic hypertrophic cranial pachymeningits and would like to communicate with someone who has any experiemnce with this disorder.
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I was diagnosed this summer. On Decadron. What drugs are you on? Side effects from steroids worse than brain biopsy, etc....There isn't alot of info out there and this is so new to me too.Never even to this forum thing. I am a 43 yr old F. Mom of 3. Wife.