You may want to contact the Nueropathy Foundation. The founder has had his condition reversed from this. I contacted him a couple of years ago and that seems to be their focus. he told me he went from not being able to walk to I guess full recovery. Of course he also said that after much testing they finally found some rare condition that was not easily found. I don't remember the details. They also assist in getting insurrance companies to pay for those expensive treatments.