Hey Ada

You have been so lucky with your doctor - unfortunatly many of us are not that lucky. Also, I am apparently one of a small percentage of patients that the doctors can do nothing for apart from palliative care. My RSD docs believe any intervention I have will make me worse - we are still discussing DBS but no decisions yet.

I just remember how scared I was when I was diagnosed - and I remeber the second girl I spoke to after I developed it was in a wheelchair. and that scared me so much!!! I didn't realise it could do that to people... until during a dreadful flare my legs died.

I just feel rude if I tell them whats wrong with me, rude if I answer and don't mention it at all and rude if I answer then and just dont mntion anything about me...

the politics of a website!! LOL

Froggsy xxxxxxxx