Thank you for this. Nice to hear I'm not alone! Yes it's truly weird! It started off slow (affecting me only it seemed at times when I'd be standing stationary doing something) and then progressed into affecting me while I'd be out walking - that's when I realized I needed to be seen (plus I had other sxs cropping up). Did you find yours also came along with dizziness/vertigo at all? That's ultimately (the dizzy/vertigo) what has me off work now, plus the side effects of the steroids (which are tragic, my body hates the junk, if I could avoid taking it I sure would).

Decided after talking with neuro to taper off Topiramate as well. It's not doing what it should be doing for me (migraine prevention) and the side effects are worse than the benefits. Not a good medication for me either. Sigh... Another failure in the books! One day I'll find something to control the migraines, I know it!

For now, let's get off what I don't need, get through these roids, and get back to work. Oh, and if relapse wasn't fun enough on its own, I get to go back to the doctor to see if I have a UTI. Weeeee! Fun never stops!