Quote:
Originally Posted by frogga
Yeh..
It is a nightmare!!! All I need is rain/ shower etc and I will have managed to go from black to red in about 2 seconds. It absolourly kills. So. I cheat. (I figure that to be honest I have better things to use with my "ok" time during the day when I can achieve things --> lectures, seeing friends, doing physio, wearing my legs, getting some work done etc.... and showers just knock me out for the next couple of days.
So, I tend to have bed baths at the moment and we wash my hair over the bath once a week. (or at the hairdressers - but as I'm in a solid cervical collar it's harder to wash it properly without me flopping everywhere.) I am currently waiting for my hoists to be put in and then I will hopefully be able to get in the bath...
With showers especially the pain is like... being stabbed and set on fire millions of times from each drop. We did come up with holding a sponge in front of the shower head to reduce the dripping but it is still so hard...
Love
froggsy xxxxxxxxxxxxxxx
|
Frogga,
Very nice to meet you. Not so much in these circumstances, but this is a great place to meet people that suffer and can relate to the pain of this awful disease.
I see how progressed your RSD has gotten in 5 years, through reading a few blogs. I feel that I am on your road...though no one can ever be certain. My prayers are with you. I am new to this site and do not know your entire story. But, I do wish that you weren't confined to a wheelchair.
Thanks for understanding MY pain as far as the shower goes. When you write the word "DROP", I cringe.
You descibed it perfectly. Thanks!