Sally, I have a question for you. Your the only SPMSer I can think of right now and you always give such great advice. But anyone with SPMS can chime in too. I'll take advice from anyone
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Im now on year 20 with MS, and am wondering how you know when you've gone from RRMS to SPMS? Ive always recoved completely from my flares, but now Im not. I can no longer walk alone, I have to use a cane or walker, I can no longer walk long distances like thru the grocery store, I have to use a motor cart. Im constantly dizzy, that never goes away. Spasticity is a constant unwanted companion. It use to be the only time I got dizzy was when a flare was coming, now its constant. I have also developed foot drop in my right foot. I could go on, but you get the jist. I asked the neuro if Im now SPMS, and he said no in the same breath as he was trying to push tysabri down my throat. I know neuro's are hesitant to label SPMS/PPMS due to insurance reasons. Im just getting nervous now.