One of the reasons why I quit the trial is because it was so hard on me. It is a form of chemo, and while the effects of the treatment only lasts about 4 or 5 days, you are kind of in bed with it. It was horrible. I wanted more than anything to try to get on with life. I had started my business and it took off, and my father needed me with his thoat cancer. Then I had my mother to care for as well. I am an only child. I moved from MO. to Fla. and this treatment was not available here. My mom wanted out of the cold chicago area, and I was sick of the whole ordeal. I also had two children to raise. I did the trail from about 1983-1993, and moved down here in 95'.
There were never any guarantees with the trails. I did it for research, for those that follow, including my own children, as there is a genetic component. My son, had the epstein Barr Virus badly too, and as a young man in his mid 30's he had thyroid cancer. I guess the more they learn about auto immune problems, the better it will go down the line. Monal clonal antibiodies, which they take your antibiodies out of the spinal fluid, inject them into mice, let them produce the proper antibiodies, and re-inject back into you, is what they were doing "after me." The diseases like cancers of the blood, were going to be done first, and the diseases, that kill are on the top of the list. My stuff only makes you sick, but not lethal so to speak. The DNCB which is a word about 30 letters long, I can dig up in my records. I never could pronounce the word. The trial was without cost to me, but working was hard to do while ill. I had no health insurance because of this trail and pre existing conditions. Set me up for failure financillly. Had to work and get on with life. It is a huge committment, to do all your life. ginnie