 |
Member
|
|
Join Date: Aug 2010
Location: South Carolina
Posts: 714
|
|
Member
Join Date: Aug 2010
Location: South Carolina
Posts: 714
|
Scrubbs
I would be VERY careful with the prednisone. I missed a dose and it really knocked me for a loop. My dr is slowly reducing mine. I'm down to 20mg.
I feel the same way. Mestinon has no effect on me and I have tried Imuran which only made me sick as a dog. I am currently on Cellcept with no effect for 7 months. I have had so many IVIG's I have lost count with zero effect. I'm like you, I need to look at another approach. I'm considering going to Wake Forest for a second opinion. I would never ditch my Neuro I love him. He suggested Wake Forest a few months ago. I do have positive Striational antibodies plus 3 others which I have been told is the most severe form of MG.
Mike
|