View Single Post
Old 09-23-2012, 07:29 PM
bernadettemarie bernadettemarie is offline
Junior Member
 
Join Date: Sep 2012
Posts: 10
10 yr Member
bernadettemarie bernadettemarie is offline
Junior Member
 
Join Date: Sep 2012
Posts: 10
10 yr Member
Default undifferentiated connective tissue disease

Hello, I've been diagnosed with this for over ten years. Along with antiphosoplipid syndrome and erythromelglia.....the only thing that is really a significant problem is neuropathy in hands and feet. Have had all the EMGs, nerve conduction and skin biopsies. All negative, until this Friday....EMG and nerve conduction finally said neuropathy...I'm on cymbalta and nuerontin. Taking vitamins and overall healtlhy. Has anyone else with UCTD had the neuropathy and did anything specific help. It has come and gone through the years....this episode the worst and not really going away. I've been told the try a hyperbaric chamber (like $20,000 and not covered), IVIF - not covered. Microcurrent machine....not really doing much. Using lidacane patches and creme. Drs. can't or won't say how bad this will get. Say it can get better, worse or stay the same. Kind of like going to Atlantic City....anything can happen. What's been everyone's experience with this? Thanks
bernadettemarie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (10-14-2012)