Quote:
Originally Posted by en bloc
I really wouldn't consider this as being 'blown off'. After all, he has done a very thorough work up hasn't he? I only think of doctor as blowing off patients when the discontinue testing prematurely, I don't think that is the case here. He may just not have any other ideas and needs to step aside at this point.
I don't think you should just give up. But I think you should focus on symptom relief...trying different treatments and supplements until you find the right combination that works for you. It never hurts to consult with other doctors for fresh ideas, so I would continue to explore an occasional neurologist. Just try to understand that they are limited also, so don't have overly high expectations.
I waited many years to find out what was behind my problems...and still waiting for a few answers now. Trying to focus on issues you can treat and improving your quality of life in regards to pain, etc would be best. You know this isn't in your head and I feel certain it will present itself when the time is right...then everything will make sense.
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You are right en bloc, I was not "blown away" as you defined blown away. My neurologist has a good reputation and he was thorough with his physical examinations. He did not give me more labworks, though when he started seeing me. He based his evaluation on the previous tests requested by the other neurologists. But it was this neurologist who did the skin biopsy.
The reason why I was not so affected when he politely suggested that I should focus on my other symptoms is because I know and sadly accepted that he could not help me anymore.
Thank you very much for the encouragement of not to give up and for telling me that its not just in my head. If ou remember, the same neuro told me once that I should consider another approach for treatment - meaning I should see a psychiatrist. I sort of consider the idea that it could be in my head. But, when something showed up in my lungs then I was reinforced that something is happening in my body. I am not sure if the M. Avium has something to do with my neurological pain. I am not even sure what to call this pain in my feet/legs and skin. The neuro told me that there is nothing wrong with my nerves. He said that as far as my nervous system is concerned "I dont see anything wrong with it". I should sort of just accept the pain.
The neuro mentioned about spinal tap. But, he said that if my pain is caused by an autoimmune disease, it is unlikely to be symmetrical. My pain is symmetrical - both feet, legs and arms. WHich part of your body has a PN?
By the way, I am now just on Spiriva (the pulmo discontinued the Symbicort). I am due for a Fluoroscopy Upper GI. My gastro doctro would have wanted an endoscopy but because of my lung problem, she decided to give the Upper GI instead. My body is so busy
Thank you. I sincerely appreciate your reply.