View Single Post
Old 09-23-2012, 08:21 PM
en bloc's Avatar
en bloc en bloc is offline
Senior Member
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
Default

My PN is symmetrical (both feet & legs--some sensory loss is also in both hands, but very mild).

Actually I think most autoimmune IS symmetrical...it's compression, injury, etc that is more one-sided. I also think diabetic and toxic PN are symmetrical as well. Both MrsD & Glenntaj would know more about this, probably better then I.



Quote:
Originally Posted by Idiopathic PN View Post
You are right en bloc, I was not "blown away" as you defined blown away. My neurologist has a good reputation and he was thorough with his physical examinations. He did not give me more labworks, though when he started seeing me. He based his evaluation on the previous tests requested by the other neurologists. But it was this neurologist who did the skin biopsy.

The reason why I was not so affected when he politely suggested that I should focus on my other symptoms is because I know and sadly accepted that he could not help me anymore.

Thank you very much for the encouragement of not to give up and for telling me that its not just in my head. If ou remember, the same neuro told me once that I should consider another approach for treatment - meaning I should see a psychiatrist. I sort of consider the idea that it could be in my head. But, when something showed up in my lungs then I was reinforced that something is happening in my body. I am not sure if the M. Avium has something to do with my neurological pain. I am not even sure what to call this pain in my feet/legs and skin. The neuro told me that there is nothing wrong with my nerves. He said that as far as my nervous system is concerned "I dont see anything wrong with it". I should sort of just accept the pain.

The neuro mentioned about spinal tap. But, he said that if my pain is caused by an autoimmune disease, it is unlikely to be symmetrical. My pain is symmetrical - both feet, legs and arms. WHich part of your body has a PN?

By the way, I am now just on Spiriva (the pulmo discontinued the Symbicort). I am due for a Fluoroscopy Upper GI. My gastro doctro would have wanted an endoscopy but because of my lung problem, she decided to give the Upper GI instead. My body is so busy

Thank you. I sincerely appreciate your reply.
en bloc is offline   Reply With QuoteReply With Quote