artchick- my rheumy initially thought I had neurologic sjogrens... not sure if she still does or not (follow up in a week). my autoimmune markers are always up.. I also have days, which are more rare now thank goodness and usually after pushing myself too far or being sick with a cold/cough etc where I can barely put one foot in front of each other, breathe, or snarl a smile.. and then other days where I am satisfactory or pretty darn good! I was freaked out about 2 months ago about my swallowing and nasal voice - they were awful, I couldn't hardly take pills, eating and drinking were all hard, now swallowing is back to normal- after a round of IVIG... it is all so strange, that is for sure!!! Looking in the mirror is always strange for me when my IVIG wears off, as I just look frowny, tired and just not the same as 2 years ago, with my saggy face!