The "best of the best" is the one that YOU feel the most comfortable with and who inspires the most confidence in you. If you aren't comfortable enough with your doctor to speak up about things that are troubling you, then you aren't going to have a good relationship.

A doctor doesn't have to be an MG "specialist" in order to be able to treat it well - they do, however, have to be intellectually curious enough to be willing to work with you to find the best solution for YOU.

Eventually, most of us become our own best specialist, because we are the one who is living with this disease 24/7/365 - no doctor will EVER have that kind of knowledge!

Thanks to the internet, most people are able to figure out a lot of stuff that in the past did require years and years of study - now we can look stuff up with a couple of keystrokes. I'm not saying that we can replace a doctor's expertise, but we certainly have access to a lot of information that wasn't available 20-30 years ago.

We are also able to talk to other people who have an intimate knowledge of what we are experiencing - and all of us know that you cannot fully appreciate what it feels like to live with this disease until you have it. Most doctors will never have MG, so they can only try to understand what we are going through.

But it's hard to REALLY understand MG if you don't have it.