I went for an appt. with the nurse practitioner at my doctors office and she told me the MG specialist responded to their office saying he felt that it was not MG or urgent so would not be able to see me for one year to 18 months so that route is out. I doubt I will make it that long.

Needless to say I am very disappointed and kind of shocked as I have read some of the things he has written and breathing issues are considered urgent.

I am having a MRI on Saturday of my brain and spine since MS was also mentioned. I feel so bad but I told my husband lets hope it shows MS because I have no other avenues otherwise. There is not even a neuro where I live and I don't know how to go about finding one who will see me soon and listen and my doctor has told me he is out of ideas.

I think the stress is making things so much worse right now. I am trying to hold things together around my family because they get so scared but I'm getting pretty scared myself. Sad but I find I am doing things like getting rid of personal items and not making purchases because it honestly goes thru my mind that I don't want my husband to have to take care of things if something happens.