Welcome to Neuro Talk. So sorry about the constant pain you are experiencing. If your Neurologist can't help, seek out a teaching hospital if you can. My neighbor is doing that very thing, as she has had these terrible headaches for years. She has a fentanal patch. I hope you get good information here and some other ideas to help. Also if you post what area you live in, maybe someone can help direct you in your state. I hope you can find some relief. ginnie