Hi there.
I am tempering down the prednisone, but I already notice my MG waking up... Not that it was sleeping, but I feel my body gotting weaker and weaker. I am now at that point where you HAVE to lay down at least 3 times a day, after showering / dressing, after "doing something" (like studying for 30 min) and in the middle of the day. And stairs seem to get steeper (have to climb them hands and feet), simple cookie seems to be made out of rubber, and my face is in constant "what is wrong with you?" modus.
You know, that phase where scratching your head feels like your lifting heavy weigths 50 times in a row,
And this is only 20 to 17,5 mg prednisone a day, my doc even advised going down to 15 mg.

because no way that that would give me that much more mg symptoms....
But I was told by my doc about something called rituximab. But I wondered, isn't it more obvious to try ivig for me first? MG is not an indication for rituximab, ivig is.... And well, I just think I deserve good, working treatment now.
Anyone knows what comes first? Rituximab or ivig?
Or anyone has any experience with rituximab? It seems like such a heavy treatment, much more damaging than ivig.
Oh, and another one (yeah sorry, but i have loads of questions but nowhere to turn to but here), i read you need an one time treatment of 100 mg prednison with that rituximab. Isn't that kind of a contraindication for someone who ibviously cant even have 20 mg? Or is it different because its not in pills?
Thanks all