Quote:
Originally Posted by lisainvegas
Hi All, I am new to the Board, I never thought I would be in this spot again. 17 years drug and symptom free and three weeks ago symptoms came back with a fury. Many years ago I was very involved with the MG Foundation in California and learned to be my own expert in my disease. My GP has put me on Predisone 20 mg a day and 60 mg of Mestinon every three hours but the weakness is still interfering with my ability to function. I have an appointment with a Neuro on October 5th finally. Just hoping he has treated others. So Many things have changed in treatment in the last 17 years. I don't know were to start. Thanks for Listening. I really need the support now  |
Hello there
I can imagine that sudden turn of affairs after such a long time must have been a shock for you.
I lost many of my fine motor skills a few years ago - wasn´t able to play piano, shake a persons hand, pull a small weed, etc over a period of two years due to fatigable weakness. It took a whole year to gradually get those functions back. Now I find myself living in awe and wonder and appreciation just because I am able to type this message with my fingers, play a guitar and piano again, turn pages of a newspaper. What I had may not have been MG but I know I would be very upset if I lost those functions
all over again –
especially as they are so much more precious when you get them back than they are before you loose them.
I really hope for you that your neuro can put a good light on this for you. Good luck next week
Anacrusis