this is a great thread -dialogue with people in the "know" sitting in the other chairs at the table.patient advisory
members could be filled with less agenda and boldly communicative and educational.

Doc John you must have wanted to get those things off your chest for a long time. please understand that it's lack of more communication with researchers and business people that eventually turn patients into angry criticizers.

It's been over a decade since the pipeliners started what the larger orgs are finally doing. we nagged - we criticized - we changed the world of pd research over gdnf. but we can't get the regular communnication that would make us be able to help instead of criticize. and we are not acknowledged - it amuses us.

now - a question about gangliosides. i didn't even know they were still around ? weren't they canceled or sold by amgen? didn't they talk about that trial on brain talk or do i have the wrong drug.

remember elvis, tom819, bernie? same drug?

pdpipeline.org