Quote:
Originally Posted by 4-eyes
I think you are confusing "life expectancy" with "quality of life." One can live an average life expectancy with a variety of chronic conditions, whether they are the original disease process or the side effects of treatments.
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True, there is a big difference between both. I was told MG doesn't effect neither one of them, but in my situation (and in many others too) it does.
But I do mean life expectancy in my story. Because they kind of told me my life expectancy is rather lower then it should. Heartproblems, diabetes and especially the liverdamage are taking years off. Not that I really do care, I care much more about quality (of course!) but it's just something I find remarkable.
Because every leaflet I got with MG information, says the opposite.
And true, it is just "luck" I got those damaging, some irreversible, side effects, but still... It's not that uncommon to get this kind of problems if you take steroids / immune suppressors for years.
@Kathie, this is what my neurologist told me to do... His thought was: you're weak. Protein is good for muscles. There's loads of protein in eggs.
No scientific stuff, just something he said. I never ate 2 eggs a day, how can you do that :O and what aboit cholesterol? Maybe we just try it all together, lets all eat 2 eggs a day for a month, see what happens!