Hi everyone, my name is Terri, diagnosed w/ MS yesterday 10-3-12.
Cried me a river yesterday..and a lil this morn.
Onset of my journey was 8-24-09 w/ numbness beginning on right toe, then left toe, then slowly day by day working itself up to my waist during the course of approx 3 weeks.
Then thankfully it all began to reverse week by week from the waist down this time & all sensation came back except for residual loss of feeling from knees down, I know am officially a Weeble as I know wobble.
MRI's showed lesions, 1 on brain, other on t-spine, no o-bands.
Diagnosis was Transverse Myelitis.
Thennnn fast forward to a lil over 3 years & approx 2 months ago I had a harsh spasm in the right arm for days on end, after it ended my upper right quadrant was numb, stayed that way for 2 weeks then all feeling came back.
Neuro visit called for more MRI's & another dreaded LP, lesions show no growth, lots of changes in c-spine but no lesions & the results of the LP came in yesterday showing O-Bands & something about my eyes, I was too shocked/scared to ask/say anything.
Dr asked if I had any questions & I simply nodded No thru my sissy tears & of course have now thought of a zillion questions to ask her.
Now I have to have a Evoked Potential ? test & some special IGMCNO (i made those letters up, i could barely hear her thru all the thoughts running rampant in my head) blood test for my eye or brain ? Foggy here now.
And they have a nurse coming to show Hubby how to give me shots of Avonex because these hands cannot stick a needle into this body...I decided !
And I'm confused, who says I'll have another spasm incident & need meds now ???, I'd never been ill a day in my life until 3 years ago so all this is so new to me.
Sorry for the long long tale, so much to read, learn, about MS, TM seemed like a cake-walk now.
Off to read more of the message boards now, thank for you for listening ~ Terri
p.s. hope i posted this in the right spot, in the right way