Quote:
Originally Posted by StephC
I realized today I am supposed to be preparing for board certification next March but havent started because I have, like everyone else on here, been forced to become certified in learning how to deal with MG.
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Oooooo!!!!….good luck with changing brain gears
asap then! (thanks for sharing those interesting but what must have been terrible symptoms of GBS)
Quote:
Originally Posted by AnnieB3
Scrubbs, After I've gone out to do errands, I can have what I call "one day" and "two day" payback. The second day is always worse.Annie
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Hmmmm…interesting.....
After a party (rare occurrence!) without alcohol (even more of rare occurrence!!!) - with too much standing and too much heat from a fireplace - I got ´payback´ in trunk muscles and ptosis a day late and it lasted about 5 days. I also got my myasthenic ´payback´ from non-MG friendly medications
always one day late.
Quote:
Originally Posted by Stellatum
For a course of about year, my weakness headed down: swallowing troubles, weak neck, weak sides, weak hands, weak legs...I was hoping it would head out the bottom of my feet, and I'd be all better. But then it started at the top again.Abby
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I put a question out on another forum once about which direction symptoms progressed, almost all the answers were from people with progressions from ´up-down´ but you are only the 4th person I know to have ´down-up´ progression.
Quote:
Originally Posted by southblues
But the whole process wanders around.
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I think I just didn’t know that – thanks for that confirmation sentence, Celeste!
I realized that my wandering weakness was so vague in the beginning that it´s only recently I even knew that a neuro is the person I needed to see and out of the 4 neuro appointments I have had in my life –
none were to do with
discussing how MG works – just a few tests and discussions about
diagnosis. That special appointment with MG specialist is coming up shortly.....
What threw me especially about my hands/arms is that such a long progression to a peak and then the year of gradually restoring functions felt more like a slow recovery from a car accident than a fluctuating disease. I was under the impression that weakness attributed to MG would have a slightly faster tempo and be more erratic with its remissions......Thanks everyone so far
