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Old 10-06-2012, 04:41 AM
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alice md alice md is offline
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Join Date: Sep 2009
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10 yr Member
alice md alice md is offline
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alice md's Avatar
 
Join Date: Sep 2009
Posts: 884
10 yr Member
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@alice md, I'm a C too.
But I was told it's not that easy to just "dont take any" because it will flare up like hell and get's back even worse then it was before.
Where is the evidence for that?

I am not talking about abruptly stopping all medications in a dangerous way.

It took me nearly a year to cautiously decrease the dose of the steroids, even after I had no doubt that they only made my illness worse not better and I had a clear gradual improvement with every dose decrease. ( I went from being nearly bed-ridden and requiring respiratory support most of the day on 100 mg. every other day to being able to resume part time work when I was down to 10).
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