robocar, I think you are absolutely right! I think it was the way our parent's generation were taught to deal with problems - they didn't admitted to problems, they did not deal with them head-on, they just accepted what the doctor said, and they tried to keep smiling and go on as if nothing had changed. I think our generation has a very different and probably more healthy philosophy. We do not accept things at face value, we research analyze and try to get to the root of thing, question doctors, and seek out others to talk with and deal with our problems - like this forum. This forum is a life-line.thanks everyone.

BackwardPawn, try to hang it there. I know it is very hard to deal with your illness. Parents never want their children to suffer. They are probably still in denial. Give them time and try to educate them slowly in how they can help your needs physically and emotionally. Let them know how your are feeling and how their actions make your feel.

Does anyone know if there is a support group for MG families that may be able to help them? I know there is an MG of Western Pennsylvania that tries to give support for some of these kinds of issue. I would try to see if there is a resource for your parents that they could talk with for them to handle the situation better.
Our thoughts are with you,
kathie