Well, I cannot say that the neuro appointment went well. He looked at the list of test results and symptoms and said "I do not think it is MG". He did not do an EMG because of my history of RSD. He ordered a bunch of blood test, including antibodies for MG and antibodies for a bunch of other rare autoimmune diseases and B12 & folate. He is sending me for a test that is suppose to measure and evaluate the ptsosis and another for tinnitis for the unsteady gait. No medicines because he does not think it is MG.

So now I am in Limbo Level 2. If my antibodies do not come back positive and he does not treat something, I am going down to Jefferson Univ hospital. The whole exam took 15 minutes. He tested my muscle strength once on each limb and did not do repetative tests to see muscle fatigue.

I am slightly depressed and very frustrated. Any suggestions on what to do?
thanks,
kathie