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Old 10-07-2012, 03:37 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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natops- glad you felt some effect from it, but sorry it didn't last long!
Was this your first round of IVIG?
I had my initial loading dose in the hospital and only had mild improvement.. I was defintely better, but it was mild enough that I wondered if it was just placebo effect.. it wasn't until the 2nd round that on the 3rd day or so afterwards I woke up a changed person - like my old self! it lasted about 10 days until I felt it all start taking over me again..
The neuros said a lot of people take a few rounds before noticing a difference .. have they talked about DAP as well ? I hear the combo of IVIG and DAP is what really works for LEMS..
Do you have facial symptoms? ptosis and swallowing/speech issues at all?
Good luck!!!
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