Quote:
Originally Posted by EE03
Have you tried to get audio books? Its not a solution, but at least you'll get to read without the headaches. If you would care to share, what sort of connective tissue disease are you dealing with? I have TN and ON and Sjogrens. Some docs say the Sjogrens can affect nerves and others don't pay it much attention and its also considered a connective tissue disease.
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If the neuro opthamologist cannot help me, I will definitely switch to audio books. My problem is sometimes I can read longer than others - both regular books/magazines and my IPAD.
I don't mind sharing at all- I have Ehlers Danlos Hypermobility (HEDS)which I discovered was the cause of my dysautonomia. I saw many docs on my 30 year journey of headaches and was finally diagnosed by a geneticist. I recommend anyone with intractable headaches (especially if you have autonomic problems) to read about the various types of Ehlers Danlos. I cannot post a link yet - not enough posts. There is an excellent NIH article by Dr. Howard Levy and other excellent articles by Dr. Pocinki.
Thanks for the advice!