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Old 10-09-2012, 09:50 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Do they have you on a short-term dosing of Pred? I know that you were in a crisis, so they wanted to get you to recover as quickly as possible. Did they do Solu-Medrol IV steroids in the hospital and then tablets after that? Are they planning on tapering the dose (how high is it?) after they see how you're doing?

Pred is not an easy drug to take on a long-term basis and comes with a lot of side effects. Mestinon is a good helper drug but doesn't address the immune process.

If you feel you need to, call your neurologist and ask questions.

Extremes of heat and cold can make MG worse. So can certain drugs, lack of sleep, infections, etc.

I hope you will continue to do better.

Annie
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