No i dont think my neuro will care what this guy says. They dont know each other and i think my neuro is confident in his ability - perhaps the biggest reason i like him so much was the first time i met him was his response when i had told him so many other doctors said it was in my head and i could tell he did not approve of that and assured me wasnt in my head. Not that he believes everything i say and i can tell he is cautious about discerning what is perhaps anxiety driven symptoms (i think my breathing issues) versus genuine weakness, etc. even so he is not perfect but at least i feel like he considers me a unique patient and has even agreed to my suggestions (ie starting mestinon, adding timespan, increasing prednisone) in between appointments.

On a positive note yesterday and today were the best days i have had in awhile...i am thinking the prednisone is starting to kick in...it has been 5 weeks, 3 weeks at 10 mg and 2 at 20 and other than some weight gain (which i think has more to do with my emotional eating issue when bored and too tired to do anything) no sidde effects so far.