This sounds just terrible. I hope you will get some relief soon.

I want to say that one of my "numerous" docs also prescribed Robaxin at one time for cramping, also trigger point injections... I have had so much crap prescribed that my liver and kidneys probably groan when they see a new pill coming their way...

The reason I keep asking about electrolytes, is because some imbalances, potassium, for example, can cause muscle cramping... I did not remember you mentioning that as part of the upcoming bloodwork.

It is my understanding that in PN, the nerves either hypofunction or hyperfunction (or both). I do not have enough knowledge to put all of this together, but I do know the muscles are innervated by nerves. If the muscles are inflammed or the nerves are malfunctioning at the neuromuscular junction, perhaps this is why you are having such severe cramping... If it were me, I would see if there is something other than Klonopin that will calm down the nerves.

I feel so helpless when I read about this... Wish I could do something...

Much love,

Cathie