Kathie, I'm sorry you're still in limbo. It often isn't as easy as, "Hi, there, patient . . . your eyes are droopy so I guess you have MG."

Does your neurologist think you have MS? Or is he ruling it out . . . by charging your insurance company as much money as possible. Have you had a brain MRI?

http://www.webmd.com/multiple-sclero...otential-tests

Is this neurologist an MG expert? Isn't your RSD isolated to a specific area?

A SFEMG should not make RSD worse. I'm not expert but it's the more specific test and would probably be done on a deltoid (shoulder), EDC (wrist) and/or frontalis (forehead) muscle.

I hope you don't have to wait too long for answers. Hang in there. If you get worse and have muscle weakness that makes you unable to walk/move well, swallow or breathe, dial 911. If you do have MG, it can get worse fairly quickly.


Annie