I know it's not highly prescribed due to the dangers that surround the disease, but I've pushed through and have started running again after about a two month hiatus. I'm not going to say most people should, and the dangers of running/exercising must be taken into consideration, however, I'm happier now being able to run again than I have since I first started experiencing symptoms at the beginning of July.

Prior to developing my symptoms and receiving a diagnosis, I had three half-marathons in November, December and January, as well as a relay in November, already scheduled. I may have to walk any or all of them, but I'm bound and determined to finish them, one way or another. And I've been feeling good enough recently (and I've been running again recently), that I've signed up for another relay coming up this weekend.

Good luck to both of you that you will be able to progress through the disease and be able to run once again!